Information for Patients

The Family History of Bowel Cancer Registry


What is your family history?

What is your family history?

The Family History of Bowel Cancer Registry was founded in 2010. It has been a useful resource for hereditary and non-hereditary colorectal cancer research conducted at West Middlesex University Hospital. Our clinicians and researchers have utilised the information our registry provides for research on the causes of colorectal cancer. It helps to link our patients with their screening and surveillance programmes, and also in to local and national research projects such as the Cancer Research UK study CORGI (COloRectal Gene Identification Study). The registry also provides services to families, community health professionals, and the general public, including educational materials and programs on hereditary colorectal cancer syndromes, cancer genetics, and current research.

Family History of Bowel Cancer Registry;

  • Evaluation of family histories based on questionnaires and medical records
  • Genetic counseling
  • Recommendations regarding cancer management
  • Development and implementation of research studies
  • Provide information for patients and professionals about cancer genetics research
  • Referral of patients and service providers to community and hospital resources
  • Development of literature for use by public and private agencies and individual patients and their families

Conditions and Syndromes;

  • Family History of Cancer
  • Lynch Syndrome
  • Familial colorectal cancer syndrome-X
  • Familial adenomatous polyposis coli (FAP)
  • MUTYH-associated polyposis (MAP)
  • Peutz-Jeghers syndrome (PJS)
  • Juvenile polyposis
  • Hyperplastic polyposis syndrome (HPS)
  • Hereditary mixed polyposis syndrome (HMPS)
  • PTEN-mutation spectrum

 

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About kjmonahan

Service lead for Family History of Bowel Cancer Clinic

Discussion

8 thoughts on “The Family History of Bowel Cancer Registry

  1. How do you get to have an appointment at your clinic ? Having had bowel cancer myself twice at the ages of 36 and 38 I insisted my son now 31 go to his Dr and request a colonoscopy . Not only was he not helped he was given no advice either ! My own GP just told me to tell him to go to a family history clinic but didn’t know where there was one !! I find this total lack of interest within the GP system extremely disturbing as I know early detection and screening are imperative in catching this disease early . Please help us –

    Posted by Maggi simons | January 12, 2015, 8:00 pm

Trackbacks/Pingbacks

  1. Pingback: Family History of Bowel Cancer? « The Family History of Bowel Cancer Clinic - September 6, 2012

  2. Pingback: Family History of Bowel Cancer Clinic – Information for GPs « The Family History of Bowel Cancer Clinic - September 7, 2012

  3. Pingback: Bowel screening – it’s working, but we could do even better « The Family History of Bowel Cancer Clinic - September 10, 2012

  4. Pingback: Contact « The Family History of Bowel Cancer Clinic - September 13, 2012

  5. Pingback: COlorectal Gene Identification Study « The Family History of Bowel Cancer Clinic - September 23, 2012

  6. Pingback: My family history means I’m at risk of bowel cancer: Matt Dawson explains importance of regular screenings « The Family History of Bowel Cancer Clinic - October 9, 2012

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