Campaigns, Charities

Survey of people diagnosed with bowel cancer under 50 years (from Bowel Cancer UK)


BowelCancerUK

The link to the survey is here: https://www.surveymonkey.com/r/2GMH52K
 

Nearly two years ago Bowel Cancer UK launched the Never Too Young campaign to increase early diagnosis and improve treatment and support for people diagnosed with bowel cancer under the age of 50. Central to that work was a survey which helped understand the experiences of younger people with bowel cancer.  Some of the campaign successes so far include:

  • Securing funding from the Department of Health for a study at the University of Exeter to support GPs in identifying possible bowel cancer in younger people;
  • Guidance on bowel cancer in people under 50 being included for the first time in the new draft NICE guideline on referral for suspect cancer;
  • A quicker referral pathway for younger patients in Scotland being put into place;
  • Development of a new range of information specifically for younger bowel cancer patients to be launched soon;
  • Increasing interest and debate about bowel cancer in younger patients in the NHS (including amongst commissioners), academics and policy makers.  
  • Lynch syndrome testing to be rolled out at diagnosis for all under 50 patients.
  • A working group to be set up by Public Health England to look at surveillance screening of high risk groups including those with Lynch syndrome who often present under 50.  Progress is being made but clearly there is a long way to go.  Therefore in order to keep building the campaign, Bowel Cancer UK have just launched a new survey looking at what has changed for younger people with bowel cancer over the last two years.
If you have a moment, Bowel Cancer UK would be grateful if you could complete the survey here and share the link on social media if appropriate. It should take no longer than 15 minutes to complete, and your experiences will help Bowel Cancer UK continue to lead the change for everyone affected by bowel cancer.
 
Thanks again for your support.
 
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About kjmonahan

Service lead for Family History of Bowel Cancer Clinic

Discussion

2 thoughts on “Survey of people diagnosed with bowel cancer under 50 years (from Bowel Cancer UK)

  1. Reblogged this on the chaotic life of the toad and commented:
    Bowel cancer has been ripping holes in my family and my life since before we were told what was making Mum ill.

    It’s insidious.

    It hides behind other symptoms.

    It disguises itself as other conditions.

    Until it’s too late and then you are told you have 6 months to watch the most important person in your world fade in pain and die.

    Please follow the link and fill out the questions. The more research out there the more we know, the quicker we can treat it and then we a closer to stopping bowel cancer from ripping a hole in someone else’s life.

    Thank you

    Posted by cutecraftytoad | February 14, 2015, 8:09 am

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