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Please help with a family history of bowel cancer study


A survey from Plymouth University for people with a Family History of Bowel Cancer

Some families have an inherited vulnerability to bowel cancer which runs in the family. When someone is found to have an increased risk of cancer like this, their doctor may suggest that they tell their relatives. This is because the health advice given to one person may apply to other people in the family.

If you have an increased risk of bowel cancer in your family we are very interested in what you tell us. Your views will guide us to provide better health care to families like your own. You may have experience of sharing information in the family, or you may not; we are interested to learn from everyone’s experiences.

We are conducting a survey (taking 20 -30 minutes) to gather the views of as many people as possible who have an increased risk of bowel cancer in their family.

If you are interested, please click on the link below to read an information leaflet and answer a few questions to check that you are eligible to take part. Survey questionnaires can be completed online at any time, or if you prefer, they are available in a paper copy.

ENTER SURVEY HERE

If you have questions about this survey please email: familyweb@plymouth.ac.uk , text or leave a message on 07784785368.

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Selina Goodman, PhD student & Genetic Counsellor

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About kjmonahan

Service lead for Family History of Bowel Cancer Clinic

Discussion

7 thoughts on “Please help with a family history of bowel cancer study

  1. Where is the link to the survey please?

    Posted by Susan Newton | January 10, 2016, 2:06 pm
  2. Dear Dr Goodman, I am in receipt of your enquiry below. We are an MSH2 HNPCC family. We have avery well documented history. I should be very willing to participate in what ever research you have in mind. I have had recurrent adenocarcinoma in colon and what now equates sub total colectomy. After verifying your e mail etc you can correspond etc in more detail. Thanks and regards Howard Goodrick 01884861305 07796675063

    Posted by Howard Goodrick | January 10, 2016, 2:17 pm
    • Thank you Howard of the offer to participate in our research; I would be very interested to hear your views. We are trying to find out how to improve the information given to families like yours. If you are happy to take part, please follow the link to the questionnaire on Survey Monkey at https://www.surveymonkey.co.uk/r/familywebstudy.

      In order to understand the issues in more detail we are then following the survey with some interviews. So at the end of the questionnaire you can indicate if you are happy to take part in a telephone interview with me. The questionnaire responses remain anonymous and confidential so if people give me their contact details they will be kept separate from their answers to the survey.

      Please do take part in the survey? It usually takes about half an hour to complete.
      Thanks again, Selina

      Posted by Selina Goodman | January 12, 2016, 2:42 pm
      • Dear Selina, I have completed the introductory survey. Obviously it is not possible in a short survey to cover every detail of ones own experiences and that of a family and of course all that surrounds the counselling aspects however I have indicated the salient issues.

        Posted by Howard | January 18, 2016, 5:02 pm
  3. Our family has Familial adenomatous polyposis, would this be of interest in your survey?

    Posted by Mark Hall | January 10, 2016, 5:37 pm
    • Hi Mark, we would definitely be interested in your views and experiences and those of your relatives too, if they also wish to do the survey?

      As you know having FAP in the family means that teenagers and young adults have to find out about bowel screening and their risks of cancer at an age when such topics wouldn’t normally be raised. We would like to improve the information given to people of all ages and be able to tailor it more closely to people’s needs, so yes please complete the survey, it would be good to hear from you.

      Posted by Selina Goodman | January 12, 2016, 2:54 pm

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