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New Cancer Genetics Clinic at Chelsea & Westminster Hospital


The Family History of Bowel Cancer Clinic

Picture1We are pleased to announce a new cancer genetics service at Chelsea and Westminster Hospital.  This might be relevant for you if you have a personal or family history of cancer suggestive of an inherited genetic predisposition, or a known gene mutation in your family.

The clinic is supported by Natalie Ellery Genetic Counsellor (and others) from the North West Thames Genetics service. This clinic provides advice for people at hereditary risk of bowel and other cancers, about;

  • Genetic testing
  • Prevention and lifestyle advice
  • Surveillance & Screening (e.g. colonoscopy)
  • Counselling

If you are interested in more information please ask your GP for a referral, or email bowelcancer@chelwest.nhs.uk for more information

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New Cancer Genetics Clinic at Chelsea & Westminster Hospital


Picture1We are pleased to announce a new cancer genetics service at Chelsea and Westminster Hospital.  This might be relevant for you if you have a personal or family history of cancer suggestive of an inherited genetic predisposition, or a known gene mutation in your family.

The clinic is supported by Natalie Ellery Genetic Counsellor (and others) from the North West Thames Genetics service. This clinic provides advice for people at hereditary risk of bowel and other cancers, about;

  • Genetic testing
  • Prevention and lifestyle advice
  • Surveillance & Screening (e.g. colonoscopy)
  • Counselling

If you are interested in more information please ask your GP for a referral, or email bowelcancer@chelwest.nhs.uk for more information

All cancer patients should have their DNA tested to save lives, Chief Medical Officer says


Urgent improvements needed to diagnose and manage Lynch syndrome | The BMJ


http://www.bmj.com/content/356/bmj.j1388

The new NICE guideline for Lynch syndrome testing explained · Bowel Cancer UK


https://www.bowelcanceruk.org.uk/media-centre/blog/the-new-nice-guideline-for-lynch-syndrome-testing-explained/

Sign the Lynch Syndrome petition now!


Bowel Cancer UK

Please take a moment to sign

Here’s the link to the petition

https://www.bowelcanceruk.org.uk/campaigning/take-action/

 

Caroline’s story

“Three generations of my family were devastated by cancer because of Lynch syndrome – my grandma, my mum, auntie and two uncles. I was also diagnosed with bowel cancer.

Because of my family history I should have been tested for Lynch syndrome sooner and my bowel cancer might have been prevented.

The silver lining is that now I know about the condition, I have a better chance of making sure my children don’t have to go through what I went through.” Read Caroline’s story in full

What’s the problem?

Generations of families like Caroline’s are being devastated by cancer because of an inherited, genetic condition called Lynch syndrome that dramatically increases the risk of cancer.

There are an estimated 175,000 people in the UK that share Caroline’s condition – but hardly any of them know they have it because people aren’t being tested. It’s vital they’re identified, so they can be regularly monitored to reduce their chance of dying from bowel cancer.

But our new findings reveal a worrying picture of delayed diagnosis, poor monitoring and unacceptable waiting times. A lack of leadership, locally and nationally, means no one is taking responsibility to fix these problems.

The buck must stop with the UK’s health ministers – call on them to stop cancer devastating families like Caroline’s.

What needs to happen?

We’re calling on UK Health Ministers to urgently step in and take responsibility for improving the identification and management of Lynch syndrome by:

  • Developing a national registry of people with Lynch syndrome to improve our understanding of the condition.
  • Establishing a national surveillance programme to improve access to regular colonoscopy.
  • Developing comprehensive guidelines that set out how people with Lynch syndrome should be managed.

– See more at: https://www.bowelcanceruk.org.uk/campaigning/take-action/#sthash.NLzeRz5F.dpuf

Every new colorectal cancer to be tested for Lynch Syndrome -from NICE


Great news, NICE – that’s the organisation that provides clinical guidance to the NHS – has recommended that everyone diagnosed with bowel cancer should be tested for Lynch syndrome. It’s a genetic condition that increases the risk of cancer by up to 80%.
The recommendation will go a long way to addressing the problem of identifying tens of thousands of people who don’t know they have Lynch syndrome and can’t take steps to reduce their risk of cancer.
The campaign’s working but we can’t stop here, urgent improvements are necessary to ensure that all hospitals are testing and that people with Lynch syndrome get the right care.
Can you take two minutes to urge your MP to take action?
1) Just add your postcode here to contact your MP.
2) Then download and use our template letter to write your email.
If you get a response from your MP, please forward it to us at campaigns@bowelcanceruk.org.uk
Thanks for helping to make a difference.
Sam
Campaigns Team
P.s. Our petition to improve services for people with Lynch syndrome is still live in case you know others who’d like to sign – we just passed 2000 signatures.  Click here if you would like to sign up to this petition!

 

Invite: Lynch Syndrome UK Charity Visit 12th January


The charity @LynchSyndromeUK are visiting West Middlesex University Hospital next Thursday to speak to a group of GP trainees

http://www.lynch-syndrome-uk.org/

Please let us know if you or your family would like to meet members of the charity including others with Lynch Syndrome in OPD4 at 3pm

Email: bowelcancer@chelwest.nhs.uk

Thanks

Act now to STOP genetic condition devastating families with cancer


Sign our petition now by following this link

Caroline’s story

“Three generations of my family were devastated by cancer because of Lynch syndrome – my grandma, my mum, auntie and two uncles. I was also diagnosed with bowel cancer.

Because of my family history I should have been tested for Lynch syndrome sooner and my bowel cancer might have been prevented.

The silver lining is that now I know about the condition, I have a better chance of making sure my children don’t have to go through what I went through.” Read Caroline’s story in full

 

What’s the problem?

Generations of families like Caroline’s are being devastated by cancer because of an inherited, genetic condition called Lynch syndrome that dramatically increases the risk of cancer.

There are an estimated 175,000 people in the UK that share Caroline’s condition – but hardly any of them know they have it because people aren’t being tested. It’s vital they’re identified, so they can be regularly monitored to reduce their chance of dying from bowel cancer.

But our new findings reveal a worrying picture of delayed diagnosis, poor monitoring and unacceptable waiting times. A lack of leadership, locally and nationally, means no one is taking responsibility to fix these problems.

The buck must stop with the UK’s health ministers – call on them to stop cancer devastating families like Caroline’s.

What needs to happen?

We’re calling on UK Health Ministers to urgently step in and take responsibility for improving the identification and management of Lynch syndrome by:

  • Developing a national registry of people with Lynch syndrome to improve our understanding of the condition.
  • Establishing a national surveillance programme to improve access to regular colonoscopy.
  • Developing comprehensive guidelines that set out how people with Lynch syndrome should be managed.

Find out more about our new findings

– See more at: https://www.bowelcanceruk.org.uk/campaigning/take-action/#sthash.bswfkvXw.dpuf

Testing for Lynch syndrome: an interview with Kevin Monahan


Lynch syndrome is an inherited condition which causes about 1,100 cases of bowel cancer and 1,000 other cancers annually in the UK. It is caused by a fault in the mismatch repair gene (MMR) which usually works to prevent cancer.

Source: Testing for Lynch syndrome: an interview with Kevin Monahan

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